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The original was posted on /r/cfs by /u/SophiaShay1 on 2024-08-08 02:15:23+00:00.

I’m so overwhelmed and frustrated by this whole situation. Living with long covid/ME/CFS Is crushing me. I need guidance. I need your real stories. I’ve been on 10 medications since January. Almost every single medication has either made my dysautonomia/orthostatic intolerance and tachycardia and adrenaline dumps worse. I’m waiting on lab results as we speak. I have an appointment with my doctor on Monday.

What do you wish you would’ve known about medications back when your symptoms began? It seems every medication causes horrible side effects and makes everything worse. I’ve been awake for 33 hours cycling with these same symptoms. I’m taking metoprolol XR 25mg for dysautonomia and cetirizine and omeprazole for MCAS symptoms. Please share anything you think might help me and others here. TIA