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The original was posted on /r/cfs by /u/EarthWater7 on 2024-09-20 08:37:00+00:00.

I went from mild (working full time as a nurse) to moderate/severe after continuing to push through, despite feeling poorly. About 2 months ago, I felt better, as a result of frequent rest and LDN, and went on vacation (3 hours away). While on vacation, I spent the majority of my time in bed due to pain/fatigue and, subsequently, crashed once I returned home. Since then, the recovery has been slow. I’ve been able to run errands once a fortnight, but typically experience PEM, consequently.

The other day, I received the news that I was denied long term disability and, therefore, am expected to return to work. My doctor diagnosed me with ME/CFS, but does not support disability. On the days when I primarily rest all day with minimal exertion, my symptoms are relatively manageable. However, when I start to exert myself (cleaning for 15 mins, showering, and/or computer work for 3-4 hours, etc.), I become quite fatigued and experience PEM.

I’m really torn between trying to decide whether or not to appeal the long term disability or return to some form of work. I’m experiencing a lot of pressure from society/family to return to work. How did you determine your baseline?