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The original was posted on /r/cfs by /u/Thin-Success7025 on 2024-11-08 20:19:18+00:00.
I’m not even trying to be pessimistic … and I know that there have been many people with this condition for a very long time.
Its simply just the fact that we’re in this modern age of science and medical science and for some reason this thing doesn’t have even any sort of prognostic test to determine if someone is suffering with it?
It’s such a perfect storm that it’s arguably at times completely understandable why my family is so confused and doesn’t understand how and why this issue operates.
Does it come down to suppression of information? People always writing it off as a mental affliction?
What is the GOAL here? It’s costing millions upon millions of dollars to deal with the level of disability that it is generating for people to our infrastructure, it has more cases than MS, even if it WAS mental wouldn’t it be something that they at least try to develop SSRIs for if they’re so adamant that it can be solved by CBT?
There’s no way this can continue for more than what, 5-10-15 years? Since I have joined this sub alone it’s gained nearly 1000 members, and Covid still continues to create long haulers every day.
I don’t simply believe that millions of people will be left to this fate.
We don’t DIE… we become burdens to an economic system that, despite attempts to stop, does somewhat support our not being able to support ourselves at times.
It’s completely contradictory to a capitalistic society to ignore conditions that dis include people from contributing to the machine. Nothing about this illness is profitable, unless you count the mindless buying of supplements to try to fix it ourselves.
Someone could come out with a magic pill tomorrow that cures us at make millions upon millions of dollars. Maybe that’s ultimately what you have to do, present this as a “profitable venture” rather than a problem to be solved.
TLDR: complete exhaustion and utter confusion as to why ME/CFS has no scientific test, prognosis, even understanding by doctors yet being in their guidebooks