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The original was posted on /r/cfs by /u/eatwafflesbehappy on 2024-11-08 18:35:56+00:00.
I just stopped taking amantadine because it was making me far worse, and my doctor asked me what I’d like to try next. Personally I found that strange since I’m not a doctor and I don’t know anything about medicine, but since I’ve seen a lot of people mention LDN I asked about it. They said they can’t prescribe anything off label since it’s not approved by the fda for treating cfs. I’m just curious how those of you taking LDN were able to be prescribed it? I’d love to be able to stay awake for more than a few hours every day.
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