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The original was posted on /r/cfs by /u/CommercialFar1714 on 2024-11-16 15:34:13+00:00.

Do you ever have this thought?

This is the second day in a row where I’m exhausted, in pain and sleepy yet I can’t fall asleep.

Yesterday, it was because my family was super noisy - just normal daily activities that torture me such as, doors opening and closing, talking, phone calls, cooking, using the bathroom. I started trying to sleep mid-morning but couldn’t sleep until past midnight, after everyone went to sleep.

Same thing was happening this afternoon and I told my mom about it. She got everyone to stay quiet but it’s been 2 hours and I still can’t sleep.

I’ve also used painkillers that make me sleepy. It gets drowsy, fall half-asleep, but keep waking up.

I find myself thinking, what have I done wrong? What more can I do? But I’ve done nothing wrong. Everything (including my body) is simply working against me.

We live in a world that discourages us from blaming factors outside of our control. We’re expected to take responsibility for our limitations and work on thriving despite it.

This invalidates the impact of living in a world that doesn’t work for us. When we say this, they say we have a victim mindset. Maybe that’s because we’re indeed victims. Maybe our situation is simply impossible. But they won’t accept that, they can’t admit they have failed us, so they keep gaslighting us.