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The original was posted on /r/cfs by /u/Diana_Tramaine_420 on 2025-01-19 07:01:20+00:00.


I have had cfs/me 28 years now 😬. I’ve been very severe then moderate for many years. Had a few bad years recently with Covid effecting my mental health.

But I saw a new specialist in nov 2024, started new medications (3 new ones). And I decided to try nicotine patches.

So I’ve been feeling pretty good, definitely moving into the mild range.

How do I know? Normally I don’t have much cognitive range so I watch the same thing on my iPad (on repeat) and I look at the same stuff online. Since Christmas, I have watched 11 new movies and 2 new tv series, listened to audio books which I’ve never done in my life and put the radio on 😳😳. My cognition and able to think beyond basic self care is extend. Oh and I’ve been showering standing up 😌.

But how do you not over do things??

I’m trying to keep a strict routine. I get up same time. Work from home or do hobby stuff. 12 until 2.30 I sleep. Then I do home stuff until bed.

With my energy increasing I’m so tempted to do more.