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The original was posted on /r/ehlersdanlos by /u/Available_Cycle_8447 on 2023-10-03 06:08:10.

I’m just curious

How many of you avoid seeking medical care unless it’s a trauma or otherwise urgent situation?

As long as my mcas and regular meds are being filled, I’m starting to wonder what the medical establishment really has to offer me. Besides that, I’m so freakin traumatized by being gaslit for, what I now realize, has been my whole life. I cannot take one more Dr telling me I need a psych eval. I’ve already been there done that they didn’t even read apparently. She said I need tx and mgmt for my physical conditions On top of the Heds and all it’s fun bag of comorbidities, I have immune deficiency long haul and subsequently cfsme. All I hear is you need pain therapy, you need cbt therapy, you need trauma therapy you need physical therapy…and I’m like yo my zombie brain and body barely remember or have energy to carry out my daily functions. Now, on top of trying to get you people to diagnose me with everything that’s wrong, and barely managing to live on my own, you want me to do more than I’m already doing? I just cannot If I figured out most of what’s wrong on my own, can’t I just manage this on my own for the most part? I’m sick of being treated the way I have been treated. Going to drs only seems to make everything worse. It’s not like anyone will pay attention to you unless you’re in a crisis situation in the current medical climate anyways. And every time I do go I’m risking exposure to things that could take me out with not yet treated immune deficiency and recent resistant infections On the same note, I was bullied by a group of my neighbors I thought were nice the other day (bc I didn’t want to go drinking and dancing I’m making everything up and I’m addicted to mmj and I should just ‘snap out of it’) so maybe I’ll just stay indoors forever.

Who’s taken the “I’m a lone and distrusting hermit” approach and felt better for it?