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The original was posted on /r/ehlersdanlos by /u/dirtybugboy on 2023-10-03 11:57:39.

My GP referred me to a rheumatologist for suspected hEDS and POTS. The rheumatologist went through to screening (bending my body in unnatural ways) and essentially said “yeah you’re hypermobile, physical therapy will fix everything” . I asked about testing because my potential EDS and POTS is pretty debilitating and I’m working on getting disability and the diagnosis would help with making a case and she said the center won’t test because it’s expensive and “not necessary”. Spoiler alert: physical therapy didn’t help (I know that it will improve things long term, but right now I am not functioning) and when I came for a follow up she just told me to take more pain killers. Has anyone else experienced this? It’s the only rheumatologist in the area that takes my insurance and she swears on her life that all her other hypermobile patients were “fixed” after physical therapy. I feel like she’s seriously minimizing my concerns and doesn’t seem educated on EDS