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The original was posted on /r/ehlersdanlos by /u/autumnskylar on 2023-10-04 19:16:24.

It seems the longer I’ve been diagnosed with EDS, the more comorbidities rear their ugly heads, and the less my doctors seem to care. Doctors that once bent over backwards for me now just don’t seem to want to figure out new conditions. Currently dealing with an enlarged liver that my GI doesn’t seem to care about despite my symptoms. This is the sane guy who has rushed me to the ER and met me there to advocate for me to get treatment for severe impaction. I have the same issue with my GYN. He said he’d only prescribe my my birthcontrol from here on out and wouldn’t do any more testing for my pain. Again, once a doctor that really cared. Do you guys experience this too? I’m having a harder time trusting doctors now because they always give up on trying. How long will it take to find doctors that give a damn?