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The original was posted on /r/ehlersdanlos by /u/dznyadct91 on 2023-10-05 18:58:44.

For as long as I can remember I have been nauseous. So unbelievably nauseous. As I got older, new symptoms started showing up. Dizziness, exhaustion, ear ringing, hot all the time, sweating profusely, migraines, diarrhea… the symptoms have been endless. Doctor after doctor has told me it’s because of the CPTSD from a traumatic childhood. It’s all in my head. I believed I was crazy. I stopped going to doctors until about 6 months ago. My new primary care doctor finally referred me to an allergist and today I was diagnosed with Ehler’s Danlos syndrome and Mast Cell Activation Syndrome. I know I should probably be kinda crushed… but honestly, I just need to sit and relish in the fact that I’m not crazy! I actually have an illness! I’m so grateful there is a community of people who have been through this. Tell me anything you think I should know. I want to hear the good, the bad, and everything in between