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The original was posted on /r/ehlersdanlos by /u/shesindenial on 2023-10-05 23:37:08.
maybe i actually am making things up or all of my symptoms are disconnected, but i don’t know, and now i’m confused! i went back to my allergist and told her that i am having new allergic reactions to different foods (like avocado even though i’ve NEVER had a reaction to it) and have had horrible nausea, vomiting, and motion sickness (which i’ve had my entire life but it’s getting worse). i have other symptoms like random bruising, atrophic scarring, hyper mobility, allergies that aren’t really allergies, and even large eyes but small ears but my allergist doesn’t think i have it. During the criteria diagnostics she would say that i kind of had something but would mark it as a no (for example, she said i have velvety soft skin but not unusually velvety soft), so the diagnostic came back as inconclusive. i got a referral but i don’t know, now i think that i have these GI, skin, and allergy symptoms that are completely disconnected. it’s just weird that both me, my mother, and my brother have all of these symptoms but my doctor says it’s likely i don’t have it. where do i go from here?