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The original was posted on /r/covidlonghaulers by /u/TTx_333 on 2023-07-31 00:20:14.

Greetings All,

As the title suggests, I currently have ground glass nodules in my lung, one is

7mm and two others are 2mm. These haven’t grown or shown any signs of anything

other than scarring, presumably damage from COVID-19 which I’ve gotten repeatedly

over the last few years, although the lung with the larger node is showing loss of volume).

This recent bout was in December. Its been 8 months and even

though I had almost 3 weeks where it relented, the same cluster of symptoms seems

to have returned :

  • Gasping for air fairly often

  • Serious 7/10 - 9/10 pain headaches

  • Tingling in the limbs

  • Dizziness, Extreme Fatigue, Post-exertional malaise.

(This set of symptoms tends to “hit hard” relent, and repeat… for years)

I’ve done some reading into how series these ground glass cysts can become (fibrosis,

cancer, ILD, etc) and also how these can be benign and go away on their own. The last

lung CT showed no growth and no artifacts of fibrosis or cancer.

The doctor didn’t seem concerned enough for a follow up, just to repeat the control measurement within a year. At my last meeting with him, he suggested its a fairly normal occurrence from COVID and was nothing to worry about, assuming follow up scans were normal.

Everything I’m reading suggests that fibrosis is a possible but much less likely outcome,

but nothing is really clear to me. The stuff I am reading is really alarming me.

  • CAN these GGN’s go away on their own, even years after multiple COVID infections?

  • Are the constantly recurring symptoms (which are themselves really worrying) just

normal post-COVID stuff? A lot of people say this eventually remits on its own and it just

takes patience, pacing and time.

  • Took a recent COVID test to see if it was a re-infection. Does not seem to be the case.

  • I’ve read getting another dose of vaccine can help - would this be wise to try? What

about hyperberic treatments?

I know nobody can offer medical advice but I really just wanted secondary opinions on

anyone who might know more or have a better idea of what could be happening here.

Much Appreciated.

TT