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The original was posted on /r/covidlonghaulers by /u/Old_Actuary_3472 on 2023-07-31 04:29:24.

I know doctors don’t really know yet but I’m still confused if CFS stemming from long covid is the same as original CFS.

It’s been two and a half years for me now dealing with these symptoms and sometimes I remember how long it’s been and lose hope that I will get back to my old self. The PEM just never goes away. No matter how much I rest. And the brain fog and fatigue are life changing to say the least.

I’m a person like everyone else that has things to do and it feels so unfair I can’t do them. Not to mention being able to do activities that bring enjoyment to my life.

Seeing 5% as the recovery rate is hard to wrap my head around. I dont know how people with CFS have lived like this for so many years. Life feels pointless.