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The original was posted on /r/cfs by /u/RatherBGone on 2024-08-07 19:44:16+00:00.


Sorry, not sure if I tagged this right.

How do you not feel miserable and crazy and on edge all the time from being perpetually exhausted?

It makes me feel legitimately insane that I can’t just do the things I need to do, want to do, because I just don’t have the energy. To sleep for 7-10 hours and wake up exactly the way you felt before going to sleep if not worse for years. Caffeine barely makes a dent, even pre-workout offers minimal results. I genuinely don’t even want to wake up because I know I’m just doing to feel like a zombie every single day.

** I’m sorry if the way I worded this implies I think people with CFS are happy and live regular lives. Last time I posted about wanting to die because I can’t live like this and people told me I need to be more positive and it’s possible to cope so that’s what I’m trying to do. I don’t think anyone forced to live like this is thriving. I’m just really struggling and I keep being told to reach out online to others with CFS for advice. I’m sorry I presented this in an insensitive way.