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The original was posted on /r/cfs by /u/BigAgreeable6052 on 2024-09-14 21:16:38+00:00.

I know it’s sweet and I know it’s well meaning. But she’s also a doctor, I’ve been housebound for 3 years.

She fell ill with Me/cfs after glandular fever in her teens. We were teenagers so she missed a lot of school and was in and out of school for 2 years. Which really really sucked for her. Not comparing or saying either or was worse.

However, she was able to leave the house sometimes. And finish her end of school exams. That suggests a bit more functionality?

I’ve had some improvements the last 6 months and have been able to go to a cafe once and ONLY start fainting an hour in (amazing).

But beyond that nothing. I just got reinfected with covid too (a covid reinfection is what caused this) which I feel has lowered my baseline again after the improvement.

I also live with functional neurological disorder that came with the ME/CFS.

Should I believe her that I will recover like her? Or remain more accepting that this might be my most probable future at least in the next 10 years?

I just can’t imagine being able to go for long walks etc or something as wild as brushing the floor within the next year.