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The original was posted on /r/autism by /u/Ela239 on 2024-10-05 18:41:32+00:00.

ETA - In case anyone is interested, here is a link to the actual code for Utah. And I’ve included a couple of excerpts below. This is NOT just some anonymized data being used for ‘public health’ purposes!

‘Diagnostic, treatment or educational facilities which provide specialized care or individualized education programs for ASD and related disorders shall report or cause to report the following to the Department within thirty days of making an ASD diagnosis or special education classification for autism or other disabilities related to autism:

(1) patient’s name;

(2) patient’s date of birth;

(3) patient’s address;

(4) home phone;

(5) patient’s sex;

(6) mother’s name;

(7) mother’s date of birth;

(8) provider name;

(9) provider degree;

(10) provider specialty;

(11) provider address;

(12) provider phone number;

(13) diagnosis of autistic disorder, atypical autism, pervasive developmental disorder-not otherwise specified, Asperger’s syndrome, or special education classification which makes the individual eligible to receive special education services; and

(14) date of diagnosis.’

‘Upon Department request, qualified professionals and diagnostic, treatment or educational facilities which provide specialized care or individualized education programs for ASD and related disorders shall allow the Department or its agents to review medical and educational records of individuals with ASD, intellectual disability, and related disorders to clarify duplicate names and to collect demographic characteristics, medical and educational histories, and assessments.’

*

Not sure if this is common knowledge, but health care providers in seven states in the US (Delaware, Indiana, New Jersey, North Dakota, Rhode Island, Utah, West Virginia) are required to report their autistic clients to the state, where the names will be stored in a database. The states can then access those peoples’ medical records at any time without their permission.

This is for real, not some dystopian future! I’ve included a post about it from a psychologist who won’t give official diagnoses to people in some of those states because of the danger. I’ve also included a link to a petition to enlist the ACLU in getting rid of these horrific policies. (Just FYI, New Hampshire is listed on the petition, but they thankfully changed their policy.)

If you’re up for it, please take a moment to check this out and add your name to the petition!

ARTICLE -

PETITION - ?