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The original was posted on /r/cfs by /u/Ketnip_Bebby on 2024-10-16 13:22:39+00:00.

This happened two years ago. I felt like just because I showed up at my appointments she was saying that, because she didn’t ask anything about how the fatigue impacts my day to day living. She DID know that I was out of work for over a year though. And not able to walk my dog anymore. I don’t understand how some doctors have such poor logic. Like if you don’t know what my life looks like then how can you say I don’t have M.E.?

I got a new GP last month and told him about this experience and he said “if you had M.E. you wouldn’t even be able to attempt any work”. I am doing 1-3 days a week. But it’s out of absolute necessity. And I have to take amitriptyline to get to sleep. Before that was venlafaxine and mirtazapine. And it’s really really hard a lot of the time. Like I’ll get a taxi there and back. I do nothing else but work those days to pay my bills. I never have the energy to see friends, or go out. I haven’t attempted exercise in years but if I do something like cut the grass (which I’ve done 2-3 times in the last year) I feel a sudden increase in fatigue and hour or two later. How can I know if I have M.E.? I am diagnosed with POTS but they mostly talk about fainting and dizziness which I don’t get.

Does this seem like M.E. or just POTS? I definitely have autonomic dysfunction, I get digestive issues and itching too. I can’t drink alcohol or caffeine at all. My insomnia is quite bad - I could go two nights without sleep unless I’m on heavy meds.