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The original was posted on /r/cfs by /u/Parisbred on 2024-10-16 21:30:06+00:00.


I have been living with a friend, but he has had enough of me and a crash that I have been in for three weeks. I’m in the proverbial dark room with no sounds, but I keep crashing from hearing my racing heart, lifting my head, taking the few medications that I am on, even eating. I am so concerned that an eight mile ambulance ride to my parents’ home will make me profound. It’s not just the ambulance ride but having to be carried to my second-story bedroom. The house was designed with empty-nesters in mind, so there’s just one big bedroom on the main floor. I spent five months at the beginning of long Covid/CFS on a hospital bed in the living room, but I can’t do that again. Does anyone have any advice? I also have multiple chemical sensitivities and can’t take something like Ativan to get me through the ride home. Thank you