This is an automated archive made by the Lemmit Bot.

The original was posted on /r/cfs by /u/PigeonHead88 on 2024-10-17 10:18:59+00:00.

I haven’t tried LDN. I’m in the UK which makes it slightly more tricky as I’d need to convince someone to give it to me. But so far, nothing has worked for me (other than very recently a tiny tiny improvement with melatonin and zinc/magnesium). I am on Valtrex (valacyclovir) but tbh I was on that even before they diagnosed me with CFS/ME because I get recurrent HSV so though it may be working for my CFS/ME, it may also be working because it is dampening down the recurrent HSV that I have anyway. Antihistamines do nothing for me, no other supplement has any impact on me whatsoever.

I am moderate at the moment and I don’t want to jeopardise anything making me worse because for a while last year I was bedridden and it’s taken time to get to this point.

I am wondering whether anyone has done research on who it works for - do we know if those who have viral induced CFS/ME it works for, those whose genetics it’s in etc. etc.