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The original was posted on /r/cfs by /u/bookish_designs on 2025-07-31 04:07:10+00:00.


Hi guys. It’s been a long time since I’ve posted on this subreddit and I haven’t really felt like my voice needs to be heard on this subject so if it’s not welcome I’d totally understand.

I know the pain and jealousy I felt when others would share their success stories because I never believed I would be one. I’ve been in remission from a severe crash for about 8 months now. I’ve been in and out of remission before but this has been the longest I’ve been stabilized without any major crashes.

For me the trigger of my remission was breaking up with my ex. Our relationship put a massive strain on my body and I became bedridden in the months we lived together. Once I broke up I stabilized and started improving and was walking regularly within a month and traveling three months later.

I still get so scared though every time I feel a flare coming on the fear that this could be the one that sends me back to bed permanently. For those of you in remission does the fear ever go away? I’m in my 20s and was diagnosed at 14/15 so I’ve missed out on a lot of my teenage and college years. I just don’t want to give it up now that I’ve got it back.