This is an automated archive made by the Lemmit Bot.

The original was posted on /r/cfs by /u/ExoticSwordfish8232 on 2025-08-01 05:56:41+00:00.

How long did it take you to figure out which activities and what level of exertion causes PEM for you? When did you start to have a grasp of what your energy envelope was?

I feel really lost. I am doing my best to track everything and doing my best to pace, but I really don’t know what’s going to cause PEM and when it’s safe to do a little more when I’m feeling better or if it’s going to be too much.

One of the guides is heart rate and I’ve been tracking that. But even doing the most basic daily tasks causes my heart rate to go higher than my max, though usually briefly (loading the laundry in the washing machine, etc).

I have been sick for 3.5 years. It was definitely long-Covid to begin with and I’m uncertain if it was always ME/CFS or if it turned into ME/CFS. Either way, I only really started learning about pacing about a year ago.

I’m a single mom whose savings are dwindling. I want to work to support myself and my kids. So my motivation to learn pacing so that I can work within pacing is pretty high-stakes.