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The original was posted on /r/cfs by /u/Foreign7801 on 2025-08-01 17:27:32+00:00.

It’s Alicia for those who know me I’ve been multiple times at the ER and sent home the way I came denied a feeding tube. I’m 36kg now for a 33yo woman.

Here’s some pictures but I look even thinner now

https://imgur.com/gallery/5Hl3WCp

I thought being severe was bad, then being very severe was unbearable, then the months unable to speak at all zero stimuli was the worse that could ever happen. But this, not being able to eat and feeling like a toy in the hands of 3 years old at the hospital is the worst. Feeling like there’s no help. There’s nothing for me. And see myself slowly dying while the rest of the world goes about there day. My bones popping out more day by day.

I spent all my days in anguish and I’m losing hope, so any hopeful comment would be a godsent.

I’ve been told all kinds of nasty things at the hospital. That I won’t make it past 40. It all my fault because I don’t move enough. That I’m doing this to myself so they won’t help

The last argument to deny it was because I don’t have 24h care. And it’s the only thing they might be right about

So that’s unachievable for me. But I think it’ll be doable with a few more key caretaking hours. I did the math and it’ll be at least 400€ a month more, for at least 6 months

I also have to pay for expensive specialist appointments to be taken more seriously in my diagnoses and treated accordingly.

So any help is greatly appreciated. You’ll literally would be saving my life and I appreciate it from the bottom of my heart. Be a comment or a donation or just reading. Thank you for being here with me.

Donations: https://www.paypal.me/AliwME

https://ko-fi.com/aliwme

https://www.amazon.es/hz/wishlist/ls/110K4IONUA50B

If I don’t make it and perish

Please let this be my plea

And share it

Governments of the world,

Please open your eyes and see

WE NEED A CURE FOR ME!

I wouldn’t wish all this on my worst enemy.

Don’t let my life go away in vain

Cause that’s my biggest fear