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The original was posted on /r/cfs by /u/No-Feeling108 on 2025-08-10 22:26:03+00:00.

I went from mild to moderate. I didn’t even know I had this awful life altering disease until I got to moderate. I knew I was tired ALL the time, that I would get “hangovers” the day after socialising or working, that i would sob at least once a week stuck on the floor or the couch unable to move or think because of fatigue. I didn’t know what was happening.

Now i am moderate. When I have a crash I now get widespread body pain. My stomach issues are worse. Cognitive issues. Physical exertion is almost impossible (im using a wheelchair when I can).

It is so hard to pace when now I feel like I can do more (went on beta blockers for my PoTs) but I have just crashed HARD. been in a crash for almost a week now. This could lower my baseline.

Just wanted to vent. I know i have the chance to now maintain my level of functioning, so that is my goal. 3 tasks a day, eating and drinking water, able to go to the bathroom unaided, able to get out of bed, and leave the house maximum of twice a week. I know my life feels so much smaller now, but when I stay in my energy envelope life actually feels…worth it. I can enjoy myself. Yeah. Thats all I guess.