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The original was posted on /r/cfs by /u/Bluenymph82 on 2024-04-07 21:52:42.
I see a lot of folks mention the known fluish feeling and such like that, but I only get that if I push really, really hard or am unwell.
For me, PEM is:
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a heavier feeling of being fatigued/drained than the day prior
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my entire body having a weak/drained feeling as though I need to drag myself wherever I go
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heavier brain fog which causes me to talk less
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higher light and sound sensitivity (could also be because of my autism and ADHD)
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needing to rest a lot more vs. the days prior and spending 60%+ of my day on the ground/bed etc.
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less ability to read without getting even more tired
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headaches if it’s really bad
I keep trying to deny I have CFS (recently diagnosed), but these are all signs of PEM, which I have, and all point to CFS itself.
In my mind, I keep thinking I’ll just rest for a bit. I’ll take a year off to care for myself and get better. Thing is, I’ve been trying to get better for the last 3-4 years with limited success (and never close to 100%).
I need to accept this. I need to finish signing up for disability and order a mobility aid because, while I might have the rare good day that makes me feel like I’m improving, I know it’s only a matter of time before I slid back down the hill again.