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The original was posted on /r/cfs by /u/Bluenymph82 on 2024-04-07 21:52:42.

I see a lot of folks mention the known fluish feeling and such like that, but I only get that if I push really, really hard or am unwell.

For me, PEM is:

• a heavier feeling of being fatigued/drained than the day prior

• my entire body having a weak/drained feeling as though I need to drag myself wherever I go

• heavier brain fog which causes me to talk less

• higher light and sound sensitivity (could also be because of my autism and ADHD)

• needing to rest a lot more vs. the days prior and spending 60%+ of my day on the ground/bed etc.

• less ability to read without getting even more tired

• headaches if it’s really bad

I keep trying to deny I have CFS (recently diagnosed), but these are all signs of PEM, which I have, and all point to CFS itself.

In my mind, I keep thinking I’ll just rest for a bit. I’ll take a year off to care for myself and get better. Thing is, I’ve been trying to get better for the last 3-4 years with limited success (and never close to 100%).

I need to accept this. I need to finish signing up for disability and order a mobility aid because, while I might have the rare good day that makes me feel like I’m improving, I know it’s only a matter of time before I slid back down the hill again.